NH Lifespan Respite Care
Special Medical Services
Children/youth with special healthcare needs
Special Medical Services members of the NH LRC Coalition are from: NH Chapter Multiple Sclerosis Society, ADRC service organization, Bureau of Elderly and Adult Services at NH DHHS, Institute on Disabilities, UNH (a UCED), Bureau of Developmental Services, NH DHHS, Cedarcrest Center (ICF-MR), One Sky (Community Based Area Agency for Developmental Services), Brain Injury Association and Coalition of Caring (same person), Division of Children, Youth and Families NH DHHS, NH Family Voices, Respitality ( a nonprofit organization offering respite services), NH Parish Nurse Program, College of direct Support training program liaison, Granite State Federation for Families and recently new members were added to the Coalition from the NH Veterans Administration (care coordinator), NAMI NH Care Support staff and Support staff from NH Muscular Dystrophy Association.
1) develop and market comprehensive respite training curriculum to meet the Lifespan Respite Care needs of NH residents; 2) establish a coordinated registry of trained LRC providers 3) complete a pilot utilizing the LRC trained providers, targeting children and youth with Severe Emotional Disturbance.
The grant activities will be completed by September 2013: 1) developed and marketed a comprehensive respite training curriculum to meet the Lifespan Respite Care needs of NH residents; 2) established a coordinated registry of trained LRC providers (currently in the process of supporting a web based access to the registry) 3) completed a pilot utilizing the LRC trained providers, targeting children and youth with Severe Emotional Disturbance and expanded it to other age groups and disabilities 4) Fostered the creation of a statewide Lifespan Respite Coalition
Statewide partners have responded well and participated in face to face meetings to discuss current needs and to participate in future planning. Bringing them together has worked for this project since many of them work with small groups of clients and they don't often have a chance to come together to discuss the larger system or to share information about what they are doing. Initially, our project was designed to work with families by identifying and training natural supports however this did not work. It became clear that the families in need of respite very often have "maxed out" their natural supports and are looking for new services.